Friday, December 23, 2011

Honeybunches medication and provider history

Age 3 1/2
  • pdoc #1 put him on Ritalin. Made him rage 5 hours nonstop. Pdoc #1 diagnosed him with BP with Rapid Cycling, Learning Disorder NOS and ADHD Combined Type.
  • Began counseling at local center. They graduated him lol.
Age 4:
  • Pdoc #2 diagnosed him with Mood Disorder NOS (Told me it was against center policy to diagnose any child his age with BP even thought he met all the adult criteria). Put Honeybunches on Clonidine. Then Risperdal. Clonidine made him too sleepy during the day. Risperdal made him gain 65 lbs in 2 years. The Risperdal worked great in the beginning until the generic came out. Then it never worked for him again and insurance refused to pay for the name brand.
  • Began seeing his counselor "L" whom he still sees today (Almost 6 years later)!
August 2008: Age 6
  • Psych exam: 2 sessions 1 1/2 hours each. Diagnosed: ADHD, Cognitive Disorder NOS, Executive Functioning Weakness, R/O RAD, R/O BP, R/O ODD. Neither his counselor nor I agreed with the ADHD. I one I most disagreed with was the RAD though.
December 2008:
  • Began seeing pdoc #3. He placed E on Lithium (Which has worked wonders... later on once it was raised to the therapeutic level). Unfortunetly he did not take E off his previous meds that pdoc #2 put him on. They had him in a mixed state.
January 2009:
  • Honeybunches began trying to think of ways to end his precious life thanks to being on Celexa. Some of the ways he thought of were:
  1. Jumping in a pond
  2. Jumping off the balcony in our front room which we quickly got sealed off with a wall
  3. Asking if jumping out the window, lying in the street, getting hit by a car and smooshed like a bug would make him go to heaven.
  • Increased aggitation. Aggressive to animals. Aggressive at school. Throwing objects. Unbuckling in vehicle. Running off or wandering a lot. Had to put alarms on the doors so we would know when he left because he was so quick and sneaky. He was always most aggressive with the children he liked the most. Very unstable at this time. Seemed to have no control over himself.
  • Very quick mood swings. He'd go from happy, extremely hyper, to depressed, irritable or mixed hyper with depression so quickly. It was so heartbreaking. I remember he'd tell me "Sorry Momma. I tried to have a good day. I tried my best but my body would not listen."
  • After his rages he always complained his head hurt.
  • Major anxiety. Withdrawn a lot. Stores too overstimulating.
  • Began seeing pdoc #4 at Tufts. He was awesome. Very understanding. He got us in contact with the CCSN at Tufts for further testing. I was sad when his contract ended and he moved back to CA.
February 2009:
  • Honeybunches made 4 trips to different ERs in search of mental health services to be turned away. Finally on the last one he was admitted to his first phosp stay at only age six. He stayed for 15 days, well 16 if we count the almost day spent in the ER! Hospitalizing him was the hardest thing I ever had to do for him but also turned out to be the best. He's been a different child since then. Things are not perfect, but they are better than I ever could have imagined. In the phosp they diagnosed him with PDD-NOS. In the phosp they took him off his previous combo of Clonidine 4x day, Risperdal, Vistaril and Celexa.  They changed his Lithium to the ER version, put him on Abilify and only gave him Clonidine at night.  They tried taking him off that, but then he could not sleep. 
Summer 2009:
  • Honeybunches underwent extensive IEE testing at Tufts Medical Center. Testing included
  1. Neuropsych Eval combined with Educational Eval: Diagnosed with extensive varied learning delays, Nonverbal Learning Disorder.
  2. Speech Eval: Diagnosed with Receptive-Expressive Language Disorder
  3. Neurodevelopmental Behavioral Pediatrics Eval: Diagnosed with BP, PDD-NOS, ADHD, Generalized Anxiety Disorder
Fall 2009:
  • Began seeing pdoc #5 also at Tufts. Seen her a few months then because Honeybunches continued doing well we decided to bring him to see somebody closer to home which brought us to pdoc #6. This pdoc put him on Tenex to help with what the school called his "ADHD symptoms". 
There. Fhew! That is his diagnostic history in a nutshell!!

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