Honeybunches has been doing better than expected with the med changes. He is on the 60 mg 2x day of Geodon and have been lowering the Abilify. Right now he's on 2 mg in the morning and 4 mg at night. Tonight he goes down to 2 mg 2x day. Then on Thursday he goes down to 2 mg just at bedtime. Sunday we stop it. At school last week they complained he was a bit sleepy. He took naps for about 1 1/2 hours each morning about 10:30. His sleep schedule has been off though. One morning last week he was up from 3-5 am, then went back to sleep until 7. Another day he was up at 4:30 for the day. This weekend he slept better, so hopefully he'll make it through his school day without napping. Thankfully the 2nd prior authorization that his pdoc filled out for the Geodon went through. I'm relieved because that's one less thing to worry about. Last Thursday he had his 1st appointment with the new counselor. I am optimistic that will go well. It seems to be a good connection. On Friday his pdoc emailed ME to see how he is doing. All in all, it has been a good week.
Monday, January 14, 2013
Friday, January 4, 2013
Happy New Year Update
I realized it's been a couple weeks since I gave an update. We had a great Christmas. All the children were happy. :) Honeybunches sang "Jingle Bell Rock" Karaoke
with his aunt on Christmas Eve. That was so cute lol. :) On Christmas Day he tried waking up at 2:30 am to open presents lol. I made him wait. He fussed for a bit in his
room then got quiet. An hour later, him and his sister were trying to
watch tv in the living room. That was not happening. I made them both
go back to bed. He fussed for a few, then I guess went back to sleep
until about 5:30 when we finally opened them. He went to the gas station up the street later that day with his sister and came back with these for me:
He bought them with his very own money. It was such a special moment and so sweet. Another very precious Christmas moment was when Honeybunches asked me who his frog pillow pet
was from. I told him Santa. He said "Can I pray out loud or do I have
to pray in my head"? I told him either way. Then he closed his eyes
for a moment. I think he was praying to Santa lol. He has been very
thankful, appreciative and full of hugs today. He took a nap this
afternoon, which rarely happens but was greatly appreciated because
Mommy and Daddy napped at the same time.
Earlier in the day he asked me how he could say "Thank you" to Santa.
I told him that Santa will hear what he is thinking. We frequently
pray, saying Grace at dinner (Which he really never joins in to say
anything in) so I think that's where he got the concept of praying to
Santa. That was one of the times I want to always remember. So
precious!
He began the Geodon a day late, on the 27th. So far he's been fine. I don't notice any changes for better or worse. He seems pretty much the same to me.
I got Honeybunches a new pediatrician. He's awesome! We actually seen him today for a sick visit. When I mentioned he had a cold since November 8th they wanted to see him. Of course, his lungs sounded fine while we were there... BUT this doc was different. He ordered some blood work including IcG testing, RAST allergy testing to check for "Inhalant Allergens" and also checked his Vitamin D level because he said low vitamin D can aggrivate asthma. At the lab Honeybunches was impressed because they had toys. That made him like that place lol. The doc seemed surprised that Honeybunches has never been tested for allergies before. He said if he's not better in a couple weeks he is thinking on doing a chest x-ray. He also said he thinks Honeybunches should see an Endocrinologist along with their own GI doctor. Time to look up another specialist and what they do lol. I will keep his current counseling and psychiatrist where they are, but change his GI doc, Nutritionist and Developmental Behavioral Pediatrician to this docs network. The way the doc made it sound, everyone would be on the same page that way. How things have been going nobody wanted to deal with him and his cholesterol, triglycerides and weight issues. The GI doc would tell me talk to his psychiatrist. Psychiatrist tells me to talk to his primary care doc. Primary care doc said that is why she referred him to his GI doc. Having everyone on the same page sounds like it would be awesome lol. This doc said that maybe he'd benefit from Omega 3. I told him how he's allergic to fish oil. He said there is some other more condensed form. We'll talk more about all that at his intake visit at the end of February. He prescribed Honeybunches a different preventive inhaler as well as a nasal spray and wants to see him again in two weeks.
A little while after we returned home, the doc called to talk to me for about 15 minutes to get more history on Honeybunches~! That really impressed me. He said that he doesn't think Honeybunches needs the Nutritionist he's been seeing. He'd like him to see an Endocrinologist who "Deals with overweight children" at a major hospital he's affiliated with instead. He said once he gets Honeybunches' records, he'll get all this straightened out. He won't even wait for the intake appointment to get that referral in, just for his records. :) :) :) I am a happy Momma right now. I guess that's why it is important to listen to that voice inside that tells you it's time for change or that things just aren't right. No doc has ever called me to talk that long. I am even more impressed~!!!!
DH went to NYC until Monday evening for his sister's wedding which is Saturday. When we dropped him off at the bus yesterday, Honeybunches cried for a few minutes but has been okay since. He did awesome for me today at the docs, shopping and on our other errands. I hope the weekend goes as smooth as today has. I wish I could clone myself though. He gets so stuck on things. For example, he's into tracking where things are on Ebay that we ordered. He wants to check it about 20x per day and wants me to look each time. I was busy unpacking groceries and doing housework. When he wants me to look, he wants me to look now or he gets upset. Maybe he's more needy because DH is not home, so I did look almost each time to keep him happy.
The insurance company is giving us a hard time getting the 60 mg Geodon. The pdoc had to fill out a prior authorization to get them. She worked a way around it to get him enough pills for 10 days by getting 20 mg tablets and 40 mg tablets. He'll take each one twice a day to make 60. I can't understand insurance companies sometimes. It would be cheaper for them just to cover the 60 mgs. Doing it that way won't last long either though because the insurance only allows 60 Geodon pills in a month, even on the generic. IDK what we'll do if this all doesn't get straightened out in 10 days. We might end up back at square one.
He began the Geodon a day late, on the 27th. So far he's been fine. I don't notice any changes for better or worse. He seems pretty much the same to me.
I got Honeybunches a new pediatrician. He's awesome! We actually seen him today for a sick visit. When I mentioned he had a cold since November 8th they wanted to see him. Of course, his lungs sounded fine while we were there... BUT this doc was different. He ordered some blood work including IcG testing, RAST allergy testing to check for "Inhalant Allergens" and also checked his Vitamin D level because he said low vitamin D can aggrivate asthma. At the lab Honeybunches was impressed because they had toys. That made him like that place lol. The doc seemed surprised that Honeybunches has never been tested for allergies before. He said if he's not better in a couple weeks he is thinking on doing a chest x-ray. He also said he thinks Honeybunches should see an Endocrinologist along with their own GI doctor. Time to look up another specialist and what they do lol. I will keep his current counseling and psychiatrist where they are, but change his GI doc, Nutritionist and Developmental Behavioral Pediatrician to this docs network. The way the doc made it sound, everyone would be on the same page that way. How things have been going nobody wanted to deal with him and his cholesterol, triglycerides and weight issues. The GI doc would tell me talk to his psychiatrist. Psychiatrist tells me to talk to his primary care doc. Primary care doc said that is why she referred him to his GI doc. Having everyone on the same page sounds like it would be awesome lol. This doc said that maybe he'd benefit from Omega 3. I told him how he's allergic to fish oil. He said there is some other more condensed form. We'll talk more about all that at his intake visit at the end of February. He prescribed Honeybunches a different preventive inhaler as well as a nasal spray and wants to see him again in two weeks.
A little while after we returned home, the doc called to talk to me for about 15 minutes to get more history on Honeybunches~! That really impressed me. He said that he doesn't think Honeybunches needs the Nutritionist he's been seeing. He'd like him to see an Endocrinologist who "Deals with overweight children" at a major hospital he's affiliated with instead. He said once he gets Honeybunches' records, he'll get all this straightened out. He won't even wait for the intake appointment to get that referral in, just for his records. :) :) :) I am a happy Momma right now. I guess that's why it is important to listen to that voice inside that tells you it's time for change or that things just aren't right. No doc has ever called me to talk that long. I am even more impressed~!!!!
DH went to NYC until Monday evening for his sister's wedding which is Saturday. When we dropped him off at the bus yesterday, Honeybunches cried for a few minutes but has been okay since. He did awesome for me today at the docs, shopping and on our other errands. I hope the weekend goes as smooth as today has. I wish I could clone myself though. He gets so stuck on things. For example, he's into tracking where things are on Ebay that we ordered. He wants to check it about 20x per day and wants me to look each time. I was busy unpacking groceries and doing housework. When he wants me to look, he wants me to look now or he gets upset. Maybe he's more needy because DH is not home, so I did look almost each time to keep him happy.
The insurance company is giving us a hard time getting the 60 mg Geodon. The pdoc had to fill out a prior authorization to get them. She worked a way around it to get him enough pills for 10 days by getting 20 mg tablets and 40 mg tablets. He'll take each one twice a day to make 60. I can't understand insurance companies sometimes. It would be cheaper for them just to cover the 60 mgs. Doing it that way won't last long either though because the insurance only allows 60 Geodon pills in a month, even on the generic. IDK what we'll do if this all doesn't get straightened out in 10 days. We might end up back at square one.
Subscribe to:
Posts (Atom)